Living With Crohn's Disease

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By Barbara Kay

Living with Crohn's

I've had Crohn's disease most of my life. Living with the disease hasn't been fun, but I have learned how to still live a full and enjoyable life.

If you have been diagnosed with Crohn's, first learn everything you can about it. Some people just have mild Crohn's and it doesn't effect their lives very much. For your sake I hope that is the case. Others have severe Crohn's and it controls a good portion of their lives. Mine is considered moderate.

I'm hoping to be able to give you some tips to help you live a better life. After living with this disease for so many years, I've learned some coping measures. Everyone's disease is different and some of these ideas may work for you and some may not.

Take heart. As you get older the disease does seem to get milder. The immune system lessens once you are past 50. Some people have the disease in their 20's and then the disease just disappears. For me this isn't the case, but maybe for you it will be.


Some Helpful Tips

First of all get exercise. Walking helps, but don't overdo it. An hour a day is good. Not only does the exercise help the immune system function better, but a walk can relax you. Swimming and other sports are good too.

Pay attention to what you eat. You might start noticing that some foods upset you. I have trouble with high fiber foods, acidic foods, and spicy foods. Some spices don't bother me and others do. You may find that staying away from some of these foods help you too. Everyone is different and some patients with this disease can eat almost anything they want.

Some patients with Crohn's can't tolerate milk. I can't but I can eat cheese with no problem. You do need to get calcium, so you should take a calcium with vitamin D tablet everyday to avoid osteoporosis. Steroids can cause the osteoporosis too, so calcium is important. You need to take a mixture with Vitamin D because the body can't use the calcium without it.

When you are having a flare-up, it might help to drink a liquid meal. Try Boost if you can handle the milk in it. There are many different products available. If you can't handle cow's milk, try rice milk with instant breakfast.

Be sure to get proper sleep. Lack of rest can cause a flare-up. If you need a nap, don't feel guilty about taking one.

Cramping can be painful. I've found a hot water bottle helps. I've taken Bentyl too which is for Irritable Bowel Syndrome, but it seems to stop the cramping at times. Ask your doctor and see if it helps.

Learn where every bathroom is at where ever you shop. This will help when you need one.

If you can't work, don't be afraid to apply for Social Security Disability. It will help keep financial strain away from your life. Any extra stress isn't good for you.

Get a flu shot every year. Taking antibiotics can upset your gut and so can any illnesses. The shot will help you avoid illnesses. Follow the recommended procedures to keep colds away, such as washing your hands often and keeping your hands away from you nose and eyes.

Eat healthy meals even when you don't feel like it. Your Crohn's may make you feel like not eating, but you need to keep yourself well. Not eating will only make you feel worse.

Take all medications exactly as the doctor prescribes them. I know it isn't fun taking pills everyday, but it will help you feel better.

Remember, nothing you did caused the Crohn's. At one times, doctors blamed Crohn's on nerves. This is no longer true. Researchers have found that for some reason certain cells in patients with this disease have mutated DNA. They are now researching to find out the reason. It may just be an inherited characteristic or have other reasons. Keeping a positive attitude is important. Someday there may be a cure.

Join the CCA (Crohns and Colitis Association) You can sign-up for an email newsletter online and keep up with all of the new research. If you live in a larger town, there may be a local group you can join for support.

Best of luck in your future endeavors with this disease. If you have any tips to help others with this disease, please share them in the comments section. The tips might help me too.







This Video Will Help You Understand Your Disease

Comments

Aceblogs profile image

Aceblogs Level 3 Commenter 7 months ago

Very useful content given in here by you , and hats off to your living spirit :)

Barbara Kay profile image

Barbara Kay Hub Author 7 months ago

Aceblogs, Thanks. I'm happy you found it helpful.

daniellehorgan 7 months ago

Thanks for sharing your tips with us. My partner suffers with Crohn's, and although he is thankfully mild, I hate to see him in pain during a flare up. I will be sure to mention the flu jab advice to him, as he definitely wouldn't be thinking so far ahead as to realise that taking antibiotics when he is sick could upset his gut. Voted up and useful!

Barbara Kay profile image

Barbara Kay Hub Author 7 months ago

Danielle, Thanks for commenting and I'm happy I could help. Being careful with antibiotics is important. My niece ended up getting surgery after taking them, because it affected her so badly. Tell him to always remind the doctor about his Crohn's when they prescribe antibiotics, because some aren't as hard on it as others.

infonolan profile image

infonolan Level 3 Commenter 7 months ago

Thanks for your information on Crohn's disease. Really impotent stuff to be aware of, especially seeing as though I myself suffer from celiac disease myself - another autoimmune condition

Barbara Kay profile image

Barbara Kay Hub Author 7 months ago

infonolan, Thanks for commenting. I've been reading about celiac disease and I hadn't realized how similar the two diseases are.

Chantal 7 months ago

Thanks so much for the helpful article.

Karen N profile image

Karen N Level 3 Commenter 7 months ago

Very helpful information, I used to have a friend who suffered from Crohn's disease but I didn't realize that it was caused by mutated DNA.

Barbara Kay profile image

Barbara Kay Hub Author 7 months ago

Karen, Thanks for commenting. The finding about DNA has been very recent.

Jen Howard 4 weeks ago

Thanks for the info,I have Crohns disease have since 1997,I have had 2 bowel reductions and they removed 24 inches of my ileum and 6 inches of my large intestine.In 2008 I had 3 infusions of Remicade and had a colonoscopy Jan 2012 and the Dr said the crohns is gone it isn't disappeared. I have not taken any med since the Remicade and I had a condos copy September 2011 and there as 5 inches of Crohns there so from Sept-Ja it just disappeared.The dr is not sure what made it disappear.i now can eat what I want and use washroom normally.I put weight on as I was 90lbs and now I doubled that so be careful as you absorb everything now and the weight just flies on ya.so I guess I am saying I had a miracle happen and I recommend anyone with this disease should request to have Removade as I believe it's what made it disappear but it did take 4 yrs to help sp be patient when I take it and if it doesn't work right away.

Barbara Kay profile image

Barbara Kay Hub Author 4 weeks ago

Jen, Thanks so much for all of your comments. I tried Remicade and was allergic to it and couldn't use it. While I was on it, it did work well. You should feel fortunate that you no longer have Crohns. I wish I could eat anything I wanted.

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